Face pe butterfly rash phir se aaya, par relatives ko kaise samjhaun ki shopping nahi ja sakti? 🥺

Kal subah uthi to face mirror mein dekha—woh butterfly rash phir se aa gaya. Jaise koi sign ho ki ab rest karo, par relatives ka phone aa gaya ki chalo shopping, chalo function mein. Aur main soch rahi hoon, kaise samjhaun ki nahi ja sakti? Bahar se to main theek dikhti hoon na? Hair done, makeup thoda sa. Andar se body jal rahi hai, fatigue aisi ki pair uthane ki taakat nahi.

Meri mummy ne kal kaha, "Tu itna soya rehti hai, kuch kaam nahi karti." Unko kaise samjhaun ki ye aalsi nahi hoon, ye bimari hai? Lupus ka flare-up aata hai to brain fog bhi hota hai. Main kal hi apni doctor se mili, usne hydroxychloroquine ka dose thoda adjust kiya hai. Dekhte hain kya hota hai.

Sabse mushkil ye hai ki log sochte hain ki main bahana bana rahi hoon. Koi nahi dekhta ki raat ko neend nahi aati, joints mein dard hota hai, aur subah uthna ek struggle hai.

Koi hai jo same situation face kar raha ho? Aap family ko kaise samjhaate ho ki ye invisible illness hai, aalsi nahi? Thoda guidance chahiye. 🥺