Beta ji, MS relapse ka pattern koi nahi jaanta — mera bhi har baar naya surprise deta hai

Beta ji, aaj subah uthi toh legs mein wohi jaane-pehchaan ka bhaaripan. Dil dhadak gaya. Pata hai ab, agle 2-3 din mein paralysis aa sakta hai. Ye MS ka relapse cycle hai—kabhi pata nahi chalta next kab aayega. June mein aaya tha, ab December mein phir. Har 6 mahine jaise appointment hai is bimari ke saath.

Maine neurologist ne naya injection diya hai—ocrelizumab. Pehle do baar lene ke baad thoda acha feel hua tha, but ab lagta hai woh bhi kaam nahi kar raha. Beta, mujhe gussa aata hai. Ghar mein beti ka shaadi ki baat chal rahi hai, aur main wheelchair par depend hun. Pati toh kehte hain "aaram karo, tension mat lo." But kya karein? Zindagi rukti nahi.

Disability ke papers bhar rahi hoon. Par ek sawaal hai jo mujhe raat ko jagaata hai: Kya aap sab ko bhi relapse ka exact pattern pata hai? Ya mera hi itna irregular hai? Koi experience share kare toh bahut madad hogi.